Podcast Episode 26: Labeled Gluten-Free, but I Was Extremely Sick

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The latest episode of my Hold The Gluten Podcast is now live!

Episode 26 “Gluten for Punishment” Features:

  • Glutened by Sami’s Bakery Millet & Flax Hot Dog Buns.  My story.
  • Betty Crocker FREE coupon to sample one of their gluten free products (cake, cookie, or brownie mix).  Call 1-800-446-1898, select Option 4, and provide your name and mailing address.
  • Starbucks discontinuing their Valencia Orange Cake.  Sign Triumph Dining’s petition to bring back the Gluten Free Cake.
  • Trader Joe’s GF Pancake/Waffle Mix and GF Mac N’ Cheese review.
  • Check out Gluten Free Faces – the latest social network for gluten free peeps.
  • Celiac Disease Insights:  Clues to Solving Autoimmunity (thanks for sharing Mike!).
  • What do YOU think of this HTG Podcast? Leave your feedback wherever you download this podcast!

Gluten Free Giveaway! Leave a comment for a chance to win Aleia’s Gluten Free Italian bread crumbs, parmesan croutons, almond horn cookies and chocolate chip cookies!  Deadline to enter is 08/07/2009.

Read the blog. Listen to the podcast. Educate yourself.

Rock on Celiacs!

Click the player below to listen to the show! Subscribe to the podcast using iTunes (or whatever media player you use) at http://feeds2.feedburner.com/htgpodcast

Click for direct download

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Maureen Stanley was diagnosed with Celiac Disease in 2005. Way back before gluten-free was “mainstream“. Maureen created Hold The Gluten blog and podcast in 2008 as a way to connect members of the gluten-free community across the world.


  1. ive never heard of Aleia’s Gluten Free so I hope I win! I love trying new stuff and posting my review for all to see.
    Keep up the good work!

  2. I’m sorry you were so sick Maureen, but I have to tell you- I could have never imagined a situation in which beer would fly into my mouth by accident! LOL Thanks for the heads-up! 🙂 The BC mixes are $4.59 here, and I thought that was too much! I’ll be calling for the coupon! Thank you!!

  3. What a cool giveaway! Especially the croutons and bread crumbs, those are hard to come by gluten free – and my husband is always up for trying some new cookies!

  4. I live in a small town, so I am not familiar with Aleia’s products. So, I would love to win and try them.
    I have heard of them and I have got into their website, so I know a little about what they carry, etc.
    Maybe I could order.I love trying new gf products.

  5. Oh man, I live on salads, especially in the summer, and I miss croutons! What a great giveaway.

    Also, a big thumbs-down to Starbucks canceling the GF cake. It wasn’t my most favorite thing in the world, but my fiance and I are constantly on road trips and now stopping for breakfast is going to go back to being difficult. Sad.

  6. Bread crumbs, croutons, and cookies?! That sounds pretty fantastic. I have yet to hear of this company, so I will have to look into them. Definitely crossing my fingers on winning these items!

  7. I have had issues with Sami’s products too. They have been taken out of the GF freezer section on my local health food store. Betty C has come to my hometown(Ephrata PA), it is $3.59/box at Redner’s grocery store.

    Please sign me up for the give away. Thanks for all you do Maureen and doing with humor!

  8. I called Betty Crocker and they are sending me the coupon! I didn’t like the Trader Joe gf pancakes either. I found Maple Grove Farms of Vermont GF Pancake Mix which didn’t have that nasty after taste, pretty much the only one I’ve had that tasted decent. I like the Trader Joe’s gf mac & cheese, but I leave out some of the liquid (or add cheese like you said) so it’s not so soupy.

  9. I’m still adapting to life free from gluten, but beer accidentally flying into my mouth is one I wouldn’t have imagined! Hmmm. I have tried the 365 brand pancake mix. It was decent. That’s the only mix I’ve tried. A friend made me teff/sorghum pancakes which were yummy. And my wife and I have experimented some with adapting recipes.

    I started following Aleia’s on twitter not too long ago, but haven’t tried any of their products yet.

  10. AHHH!! Almond Horns???!!! I thought I wasn’t really missing anything glutenous- but then your post reminded me about these AMAZING gluten-filled goey, wonderful, and insanely expensive almond horns I occassionally bought and devoured about 15 years ago. Darn!! Maybe these would compare?? I could only hope! 🙂 I’d love to win them in your giveaway. Thanks!

  11. My husband has celiac and it is still new to us. We are trying all kinds of gluten free products. Aleia’s sounds great. He has tried some different things but defintely misses bread crumbs and croutons for his salads and for his chicken cutlets. Hope we have a chance at winning.

  12. Pick ME! I want I want! Im baking as we speak (type). Im still learning this whole baking thing but its well worth it eating baked goods again!

  13. Sorry to hear you got so ill, and we all try so hard to be careful.
    I tried the Trader Joe’s pancake and waffle mix and made waffles, my kids loved them, I added some vanilla to the mix and my kids said they tasted like the real thing, maybe some of the mixes are going rancid? Tonight I am using it to make blueberry waffles. I do agree the mac and cheese was runny. In my area of Washington state the Betty Crocker mixes are around $4.50, my family agreed the white cake mix is a little dry, I was trying to find a mix to make a wedding cake out of, maybe adding yogurt or buttermilk to it will help. Pamela’s turned out to be the one I used for the wedding.

  14. It would be nice to try Aleia’s. I’m still learning about living GF. I found out 2 months ago. Your podcasts helped me a lot. I look forward to your next podcast.
    Thanks for doing it!

  15. Hi, I’m a recently (self) diagnosed celiac with 3 immediate 3 second degree relatives disease. New products are always interesting. Keep up the great work with the blog by the way!

  16. I never had a problem when I ate Sami’s bread but I stopped buying it when one of the local healthfood stores said that there were undisclosed ingredients (I think preservatives) that had been found during some testing of the products and they stopped selling it. It is still available at other area stores however.

    When I first went gluten free, a nutritionist suggested that I don’t buy any baked product that stated that it was not made in a gluten free facility. She said it is very easy for flours to be cross contaminated.

    Thanks for the podcasts. I would love to try the products in the give away. I have not seen this brand before.

  17. Really enjoyed the show as someone recently, 7/24/09 diagnosed as gluten sensitive. You provided lots of good information that I found most helpful. Please include me in the drawing for the Aleia giveaway, as I would love to try some great tasting gluten free baked goods. Diisa

  18. Maureen,
    I, too, was “glutened” with products from Sami’s Bakery. I have not tried their rolls (make that WILL NOT) but had a terrible experience with their Millet & Flax crackers. I thought I had hit a nutritional jackpot until my body firmly told me otherwise. I confirmed my suspicions with an at home gluten test kit by Elisa Technologies (www.elisa-tek.com) and the offending food registered a high positive. Fortunately, the store where I purchased the crackers welcomed learning of my experience and moved the products to another section.

    I am happy you are feeling better!! Thanks for putting my name in for the Aleia goodie box.

  19. Just stumbled across your podcast a few days ago, and have already listened to all your podcasts! Newly diagnosed celiac 4 weeks ago, totally lost, appreciate your words of wisdom more then you know, ty for your podcast and throw me in head first for the drawing! Looking forward to your next podcast.

  20. I Love your show and was appalled by your glutening by the bread in the store. I had a similar experience at the boardwalk in Ocean City last week. I had a muffin at the Bashful Banana and they told me it was gluten free. Later I didnt think it was. Maybe I should stick to labels that TELL me Gluten free. But it didnt work in your case.
    I HOPE i win.
    My fav part of your show is when you talk about products and if they are good or not.

  21. I gave my local GF store the info about Aleia’s products. I hope they can stock them. I am in Atlanta GA. I went to Aleia’s site to see if I could order from them directly after your glowing reviews. I have a great local store here in Atlanta called Return to Eden that specializes in GF products.

    Love your podcast

  22. I also live in a rural area and have never heard of these products. They sound great, and I would love to win and try them!


  23. I found your podcast about 2 months ago on a frantic search for some kind of GF communities to learn about life as a GFDF person. I travel 100% of the time, live in hotels, and live on restaurant food. Finding food that is gluten-free and dairy-free is a nightmare. I listen to your podcast on the plane and take many notes so that I have them at my fingertips whenever I go out…nerdy, but helpful.

    Toss me into the drawing – yep, head first, go ahead! Having some new food stuffs is always a pleasure. It’s like Christmas when you find new things to eat.

    BTW – I just spent a couple weeks on the East Coast at baseball games 🙂 and ate the ballpark hot dogs w/o the bun, of course, everyday I was at the ballpark. The Orioles server Esskay brand and I called them before a game and asked if they were gluten-free. They said they were; I didn’t get sick so I kept going back for more!! When there is no more beer and warm, soft pretzels lots of hot dogs will work for me. They are my bacon!

    Oh and thanks for the Joe’s Crab Shack heads up. Another great seafood place that has a GF menu is Legal Sea Foods. Luv. Luv. Luv.

    I’ve got my fingers crossed.


  24. I love your podcast. My son is the celiac in the house, but is asymptomatic so I need to hear about the “bad” GF foods to keep him safe.

    Just wanted to let you know that the TJ’s Rice and Cheese pasta comes out much better if you follow Kraft’s directions for their shaped M&C… 3 TBS butter or margarine, the milk and the cheese powder – adjust the milk to make as thick or creamy as you want, but start with the Kraft amount for a guideline.

    I hope I win, I haven’t seen Aleia’s products yet.

  25. Hi Maureen! Love the podcast. Have a question-this may be too delicate for you to do on the air. When you accidentally got glutened with the hot dog buns, did you treat the resulting symptoms or just let nature run its course. It seems to me that Immodium would cause the offending substances to remain in the gut, causing further damage, but I can’t find any thing written about this. Just curious! Keep up the good work!

  26. Maureen, I think you know I love your podcast! I hope I’m not boring you with my little GF posts on your FB site! 😀

  27. Thank you so much for the giveaway! just found you thru twitter and would love to win this… what a great giveaway. All my grandkids are either totally or partially with probs with gluten.. SO happy to have found you! Please enter me and I will be sure to pass your site on!

    Cathy b
    projecthope7 at gmail dot com
    twitter id: projecthope7

  28. It’s great to see more and more companies providing GF products. My son is autistic. He’s not allergic to gluten, but by minimizing the amount he gets, he focuses better. I’d love to try Aleia’s products.

  29. I just thought I would mention tha Betty Crocker GF mixes are about $3.50/$4 in my neck of the woods. While other gf cake mixes that are NOT good range from $5-$9 for the same size cake. So I don’t compare the price to the gluten stuff.

  30. I just would absolutely love to win your giveway. I have NOT had any bread since being diagnosed with Celiac 2 yrs. ago.
    I have read some good comments on your products. I would love to try some and then I can order.
    Thanks for making this contest possible.

  31. I enjoy the humor and down to earth tone of your podcasts, listen to them all. Thanks.

    I’d love to try anything new!

  32. I’ve been meaning to listen to this pod cast for a couple weeks now and finally got to listen tonight. I’m so sorry you got so sick! This has happened to me with a different product, my fault because I didn’t check, but it’s no fun being that sick!

    I have a bag of Sami’s crackers. I will be throwing them out now. I had purchased them and got worried because of the statement and emailed them. They never emailed me back. That’s why I was so curious about your podcast. Thanks for putting the word out about these products. I will be sure to tell my local store that they need to warn the customers about this product.

  33. The Betty Crocker yellow cake was quite a disappointment. I expected that it would cost more. But it is also half the size of a normal cake and it tastes nasty. We’ve bought all the mixes – the cookies were good. Hope the chocolate cake and brownies aren’t gross.

  34. I have Hashimoto’s Disease. It took 8 years (at least) that for someone to diagnose me. I have been gluten intolerant my entire life, but no one knew. (I’m 36). Anyway, long story short I just learned that while most celiacs can have 10 to 20 parts per million, I can have less than 5. What a bummer. I do not have celiacs, but the autoimmune attacks my brain for 6 to 12 months after I consume it and of course, I don’t usually know what has happened. I have been very sick needless to say. What i wanted to say was, I too just learned about Sami’s (my daughter and I have been eating it for a year or so). I am very bummed! AND….I want everyone who is GF and only GF to count their lucky stars. My daughter and I cannot eat gluten, dairy, soy, eggs, or tapioca. Our food bill is outrageous! So again, be thankful if you can have dairy, etc. Thanks for the great info!

  35. I liked the Betty C cookies! Iv always used Sami’s Bakery products, but maintained a head ache? I’m assuming it’s there products?

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